Chronic illness

The Frustration of More

When dealing with any health condition or chronic illness, new symptoms are never welcome. I wanted to take a moment to share what I’ve been experiencing recently to see if anyone else deals or has dealt with something similar. I have been getting attacks of severe palpitations, severe dizziness, tremors (in arms and legs), restlessness/anxiety, nausea, shallow breathing, distended neck vessels, and other symptoms. Sometimes they last for minutes, sometimes they last for over 8 hours (had to go to the ER in that instance). They are similar to those adrenaline surges I was getting before but not quite the same. I’m currently slightly hyperthyroid due to over-medication with Levothyroxine for hypothyroidism but I feel the severity of the symptoms doesn’t necessarily fit. All my labs are normal and every EKG I’ve ever had has been normal. I just feel like something is going on neurologically. There are moments I literally feel like my brain isn’t getting enough blood flow, like my heart is trying really hard to push the blood up through my neck arteries. I think the most debilitating symptoms right now are the palpitations and the dizziness. The tremors are so frequent now that I’ve gotten used to them. I asked my Dr. about the possibility I could be dealing with Chronic Lyme Disease, but she said there are specific diagnostic symptoms that I don’t have. I live in an area where Lyme is very prevelant. Just looking for answers beyond anxiety and “stress”. And I’m obviously very frustrated. I’ve learned to cope with the conditions I have and every time something more comes along, I feel like my bucket is closer and closer to the point of overflowing.

Hope everyone is well,

Lindsay B.

4 thoughts on “The Frustration of More

  1. Many of the symptoms you describe I too have. I have fibro and thyroid etc. I have had heart palpitations, dizziness (seems from meds) and lately the glands in my neck are larger. I like you I am not sure why. I just figured it was fibro.

    Liked by 1 person

    1. It is difficult when everyone just assumes it’s anxiety. I guess we really have to advocate for ourselves if we want to find out what is truly going on.

      Liked by 1 person

  2. I, too, feel frustrated much of the time because I feel like my doctors (Family Practice, Gastroenterology, Cardiology and Rheumatology) are looking at their piece of me and just treating symptoms without looking at the big picture of me. So tomorrow, I am adding a neurologist to my team. I’ve struggling with balance, memory, tremors, and other symptoms. I’ve been diagnosed with CFS and Fibromyalgia (as well as others), but now I’m starting to think that many symptoms could fall under MS. In some ways, well one way, I kind of wish it would be MS because there are treatments for that. Unlike ME/CFS.

    My advice would be to keep searching and don’t give up. Keep going to doctors until you feel like you’re being heard. I don’t know where you live, but I am thinking of going to Mayo if the neuro doesn’t find anything. As you probably know, they wrote the book on coordination of care. I keep hoping that there is an answer out there. My biggest fear is that there is not, but I am not giving up yet. Peace.

    Liked by 2 people

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s